I’ve lived as a PwP for about 8 years and shared with my siblings in the care of my father who also had PD. He passed away two summers ago at age 91. At age 63, I am still working f/t as a Professor and Clinical Research Scientist, in an area unrelated to PD. I hope that my training in epidemiological and clinical research can help others to understand how the clinical research literature can be translated for personal use (or not).
I first became deeply symptomatic and unable to take a single step, trekking toward Everest Base Camp about 8 years ago. Since that day, I never again felt ‘okay.’ Even in my early 20’s, I had experienced hour-long episodes of bradykinesia. So I consider myself a weird young/older onset Person with Parkinson’s.
When not working very long hours or doing prolonged endurance exercise every day (working for neuroplasticity!), I hang out with my partner/spouse in Brooklyn, NY, with my older son and two very old and happy dogs.