The Road To Collaboration – Clinical Trials

Sponsors of clinical trials need participants, but people do not need to participate. They may want to, but they do not have to. Want implies freedom of action and an expectation of persuasion. The difference between want and need tells us who ultimately should be in charge of the arrangement. A Clinical Trial Team is an agent […]

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Some alternative ways to get PD research done: Part 1. PwP as researchers

This is a guest blog by John Turner, who runs the site Parkinson’s measurement. This article is the first in a series of seven linked essays. In it, we describe some alternative ways to do PD research; ways that might quickly improve the quality of life (QOL) of people with Parkinson’s (PwP). Here, we are only […]

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British Medical Journal. Ben Stecher et al: Research into Parkinson’s Disease needs reform

“As Parkinson’s Disease (PD) patients and research advocates, we remain hopeful that the whirlwind of research and translational studies which flood the pages of journals around the world will result in treatments that significantly improve quality of life for people with PD within our lifetime. While the Parkinson’s community continues to wait, however, we must […]

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Patient Advocates Respond to the viewpoint on “The Parkinson Pandemic”

This post was originally posted on the WPC blog: link.  The scientific journal JAMA neurology recently published a viewpoint titled “The Parkinson Pandemic – A Call to Action” 1authored by well-known and highly respected professors and movement disorder specialists Ray Dorsey, M.D. and Bastiaan Bloem, M.D., Ph.D. The article was received with great interest from […]

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